To find your
areas of interest on either my website or blog, use search buttons below:
Corn
Allergens
A website developed by a sufferer to share information on this allergy.
Food
Allergies in the Real World
A website designed for youg adults who want to take a more active
role in managing their food allergies.
Gluten
Free Mall
On a mission to make the world a better place for people on gluten-free
diets due to celiac disease or food allergies.
Managing
Life Threatening Food Allergies in Schools (Mass. Dept. of Education)
The number of students with life-threatening food allergies has
increased substantially over the last 5 years. As with all children
with special needs, it is important that students are able to access
all education and education related benefits.
Scourge
of Asthma is Acute in NE (Boston.com - 4/26/10)
Not only does New England have the nation’s highest rate of
asthma, but the disease remains poorly controlled in most patients
- routinely causing trips to the hospital and lost days at school
and work, according to a study being released today
Cancer:
American
Cancer Society
With chartered divisions throughout the country and over 3,400 local
offices, the American Cancer Society (ACS) is committed to fighting
cancer through balanced programs of research, education, patient
service, advocacy, and rehabilitation.
Beyond
the Boobie Trap
When breast cancer survivors go to move beyond treatment into a
new way of "normal" living.
Kids
Kicking Cancer
A non-profit organization that provides weekly classes for children,
both inpatient and outpatient, in the mind-body techniques found
in the martial arts. Our mission is “to ease the pain of very
sick children while empowering them to heal physically, spiritually
and emotionally.”
American
Diabetes Association
Mission is to prevent and cure diabetes and to improve the lives
of all people affected by diabetes.
Diabetes
Basics (American Diabetes Assn.)
Diabetes mellitus (MEL-ih-tus), or simply, diabetes, is a group
of diseases characterized by high blood glucose levels that result
from defects in the body's ability to produce and/or use insulin.
Not sure what that means? This is the place to find out. We've covered
all the basics here—and you'll find plenty of links to more
in-depth information on a variety of topics and issues.
Fibromyalgia:
Fibromyalgia
- An Overview (Suite 101)
Fibromyalgia syndrome is a common and chronic disorder characterized
by widespread pain, diffuse tenderness, and a number of other symptoms.
Migraine
Headaches
Acupuncture works against tension and migraine headaches. Typically,
the patient undergoes sessions weekly or twice weekly for 10 weeks,
followed by monthly “maintenance” sessions. For the name
of an acupuncturist in your area, check out the American
Academy of Medical Acupuncture. Massage has also been found to
reduce the pain cause by tension and migraine headaches – but
not cluster headaches. For a referral to a massage therapist in your
area, contact the American
Massage Therapy Association.
HIV/AIDS:
HIV
Legal Guides
Doesn't it seem that every time you read some "helpful publication"
that explains your legal rights, you spend half your time looking
up all the big words that only attorneys could possibly understand?
Well, the AIDS Legal Council comes to your rescue. They hate convoluted
legal mumbo-jumbo just as much as you do. That's why they wrote
10 legal guides in plain, simple language.
H.I.V.
Rises Among Young Gay Men (New York Times - Jan. 14,
2008)
AIDS appears to be making an alarming comeback. The Journal of the
American Medical Association reports that the incidence of H.I.V.
infection among gay men is shooting up, following an encouraging
period of decline.
State
Health Facts.org
New data on federal funding streams for HIV/AIDS. Collected in partnership
with the National Alliance of State and Territorial AIDS Directors
(NASTAD), these data for Federal Fiscal Year 2008 are available
by state and for the nation, and represent the latest available
state-level data on all major federal funding streams for HIV/AIDS
in the U.S.
Huntington's
Disease:
Huntington's
Disease (Medical Journeys)
Huntington’s Disease is a genetic disorder of the central nervous
system. Also known as Huntington’s chorea, the disorder is
named for the American physician who initially described the condition
in 1872. The disease is caused by the inheritance of a faulty gene.
Huntington's
Disease Deciphered
Researchers at the University of Illinois at Chicago College of
Medicine have discovered how the mutated huntingtin gene acts on
the nervous system to create the devastation of Huntington's disease.
Chronic
Disease and the Internet (Pew Internet)
Recent survey data from the Pew Internet Project and the California
HealthCare Foundation show that adults living with chronic disease
are significantly less likely than healthy adults to have access
to the internet.
Pompe
Disease - An Interview with John Crowley, the Father Who Inspired
"Extraordinary Measures"
John Crowley’s life was bright: a recent MBA from Harvard Business
School, a young family, and a blossoming career…the world was
his oyster. And then John and Aileen received the shocking news
that their toddler and newborn were both afflicted with Pompe Disease,
a fatal neuromuscular disease. John’s fearless actions as he
fights to save his children’s lives are portrayed on the big
screen in the new film by Tom Vaughan, Extraordinary Measures.
Pulmonary
Fibrosis Foundation
Mission is to find a cure for idiopathic pulmonary fibrosis (IPF)
by funding research, advocating for pulmonary fibrosis issues, promoting
disease awareness, and providing a compassionate environment for
supporting patients and their loved ones.
Models
with Psoriasis Strut to Raise Awareness (NPR)
The contest, called "Addressing Psoriasis," is the cornerstone
of an awareness campaign aimed at helping people with moderate to
severe plaque psoriasis get more information about managing their
disease and feel more confident in their everyday life.
Silent
Minds (The New Yorker - Oct. 2007)
What scanning techniques are revealing about vegetative patients.
There may be quite a bit going on in there.
Social
Networks a Lifeline for the Chronically Ill (New York Times
- 3/24/10)
For many people, social
networks are a place for idle chatter about what they made for dinner
or sharing cute pictures of their pets. But for people living with
chronic diseases or disabilities, they play a more vital role.
Sjögren's
Syndrome
Sjögren's syndrome is a chronic autoimmune disease in which
a person’s white blood cells attack their moisture-producing
glands. Today, as many as 4 million Americans are living with this
disease.
Sleep
Deprivation
Impact of sleep deprivation on brain functioning different than
previously thought, WSU
study finds.
Stories
of Hope About the Prevention and Maintenance of Kidney Disease
The Kidney
TRUST, a non-profit organization dedicated to chronic kidney
disease (CKD) prevention, as well as providing financial assistance
to people already on dialysis, is observing National Kidney Month
by reaching out to people affected by kidney disease to ask for
their personal stories relating to this problem that affects 31
million Americans.
Multiple
Sclerosis:
Advances
Cited in Research on Multiple Sclerosis (New
York Times - July 2007)
Researchers have made a significant advance in understanding this
common neurological disease that causes symptoms ranging from muscle
weakness to paralysis.
Multiple
Sclerosis Symptoms and Treatment (Suite101.com - 4/16/10)
There are a number of disabilities that may affect one’s ability
to walk, yet there are probably none so extensive in symptoms as
multiple sclerosis (MS). This disease, which is also known as disseminated
sclerosis or encephalomyelitis disseminata, is a condition that
affects the myelin sheaths which coat the neurons in the brain.
Brain
Pacemaker Helps Parkinson's, But With Risks
(Oakland Press - 1/6/09)
Parkinson’s sufferers who had electrodes implanted in their
brains improved substantially more than those who took only medicine,
according to the biggest test yet of deep brain stimulation.
Brother
Rice Grad's Invention to Help Disabled People (Birmingham-Bloomfield
Eagle - March 5, 2008)
A grandson invents a device to help his grandfather with Parkinson's
disease feed himself with dignity and independence. Patti's comments: The inventor of this useful device contacted
me and gave permission to add his contact info: Jon Dekar - 248-766-2085
- dekarjop@notes.udayton.edu).
Google
Co-Founder Backs Vast Parkinson's Study (New York Times
- 3/11/08)
Sergey Brin, the billionaire co-founder of Google, says he plans
to contribute money and his DNA to a large study intended to reveal
the genetic underpinnings of Parkinson’s disease.
National
Parkinson Foundation
Since its inception more than 50 years ago, the National Parkinson
Foundation has worked to address the unmet needs in Parkinson's
care and treatment.
Stroke:
American
Stroke Association
A division of the American Heart Assn. where you can learn about
strokes and life after them.
Who's
Responsible for Care After Stroke? (Post-Gazette - 3/31/09)
With certain limitations and so long as the therapy meets the "reasonable
and necessary" test, Medicare will generally pay for PT, OT
and ST in the hospital, in a skilled nursing facility for up to
100 days, in the home setting under specific circumstances, and
at special therapy facilities.
Tourette
Syndrome
Tourette
Syndrome Assn.
A national voluntary non-profit membership organization with a mission
to identify the cause of, find the cure for, and control the effects
of Tourette Syndrome.
Tourette
Syndrome Plus
What started as a site for parents and educators on Tourette's Syndrome
expanded over the years to include other conditions such as Attention
Deficit Hyperactivity Disorder, Obsessive-Compulsive Disorder, non-OCD
anxiety disorders, Executive Dysfunction, depression, Bipolar Disorder,
Asperger's Disorder, 'rage attacks' or 'storms,' sensory integration
issues, and sleep disorders. For
every condition section of the site, site visitors will find overview
articles on each disorder as well as other helpful materials.
What
is Tourette Syndrome?
Tourette Syndrome (TS) is a neurological disorder characterized
by tics -- involuntary, rapid, sudden movements or vocalizations
that occur repeatedly in the same way.
