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Question:
My child has a reading disability - how can I advocate for
his needs? (Learning
& Reading Disabilities)
Answer:
Here are 15 guidelines that can strengthen the effectiveness
of your advocacy.
1.Have your child
evaluated by experts who can identify your childs
needs.
2.Make sure you
understand his needs before you meet with school personnel
to discuss his needs and possible interventions.
3.Make specific
requests (in writing) for meeting his needs; support your
requests with reports from well-credentialed experts, experts
whom the school respects.
4.Treat people
with respect, even if you disagree with them, even if they
reject your requests.
5.Keep looking
for ways to solve problems; remember that the schools
suggestions for solving your childs problems may be
as good as yours. Avoid the trap of advocating for a specific
reading method, especially one that has a weak research
base (e.g., Wilson, Fast Forword, Orton-Gillingham); instead,
focus on goals, objectives, frequent monitoring of progress,
and frequent meeting to adjust your childs program.
6.Keep written,
dated records of whatever anyone in the school tells you.
7.Make a copy
of every item you receive from the school. Organize the
originals in chronological order; dont write on them.
Organize the copies in chronological order by subject.
8.Have someone
accompany you to all meetings. If possible, have a knowledgeable
expert or an advocate accompany you. Make sure that whomever
accompanies you treats people with respect, works to solve
problems, and understands both the relevant laws and reading
disabilities. Unfortunately, many well-intentioned advocates
have little knowledge of reading disabilities, and many
reading specialists and special educators have little knowledge
of special education laws.
9.Take your time
at meetings, but never cause unnecessary delays. Work to
understand whats being said and whats happening.
If necessary, schedule a second, third, fourth, fifth, sixth,
and umpteenth meeting. Keep meeting until you get your child
the program and services he needs, and until he makes satisfactory
progress. If people tell you this is unrealistic, think
of the consequences of not meeting, of not getting your
child what he needs.
10.Send the school
a written summary of each meeting: what happened, what was
agreed to, what you disagree with, remaining issues and
concerns, requests for additional meetings.
11.Know and understand
the special education and and related laws that apply to
your child.
12.Understand
how the school operates, how it does things, who has the
real decision-making power.
13.Keep momentum
going. Combat the memory-numbing effects of long periods
of inactivity by contacting school personnel weekly until
your child gets the services he needs, scheduling frequent
meeting to monitor progress and problem-solve your childs
needs, keeping your childs unmet needs in the forefront
of school personnels concerns.
14.Be persistent,
be respectful. By your actionsnot just your wordshelp
school personnel realize that until your childs needs
are met you will be in continual contact with them and will
use the relevant laws to get your child the services he
needs.
15.Monitor your
childs progress. Even programs strongly supported
by research may fail your child. Small tweaks in the program
and complementing it with other instructional strategies
and classroom modifications may produce huge gains. So ask
the school to monitor your childs progress, at least
weekly. Do the same for yourself.
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