Patricia E. Kefalas Dudek
Advocate for Elders, People
with Disabilities
and Their Families

Estate Planning - Special Needs Trusts

(and Estate Planning for Children With Special Needs)

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For FAQs on Special Needs Trusts, click here

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Adults with Disabilities: Prepare for the Future with a Special Needs Trust (pdf copy)
(Michigan Bar Journal - Churchill Article - Oct. 2000) (online archived copy)

Anatomy of a Special Needs Trust: Duty of Loyalty (Nov. 2008)
This presentation was on behalf of NAELA and reviewed the complex relationships an attorney and/or trustee may have in drafting or administering a trust. There is a loyalty due to the Grantor or Settlor of the trust, as well as a level of responsibility to the beneficiaries.

Benefits Checklist (Patricia E. Kefalas Dudek)
For administering a special needs trust - used to determine if the beneficiary is getting all the public benefits they can.

Duties and Responsibilities of the Trustee of a Special Needs Trust (Patricia E. Kefalas Dudek)
A memorandum that outlines the various duties and responsibilities of a Trustee under current Michigan law.

OBRA-93 Trust Options for Persons with Disabilities (Patricia E. Kefalas Dudek) (2005 revisions)

Representing and Acting as Trustee of a Special Needs Trust (Patricia E. Kefalas Dudek - 2005)
This is from a speech I gave in October, 2005.

Special Needs Trusts, Public Benefits Eligibility and Housing Issues for People with Disabilities (Nov. 2008)
This presentation was on behalf of NAELA and was held at the Advanced Elder Law Institute held in Kansas City. I was honored to be the last speaker at the Law Student Day (a free one-day event for all law students to participate in at the NAELA Institute and learn about Elder Law.)

Articles

A Booming Business Serves Special Needs Families (Business Week - 1/8/09)
Employers, financial services firms, and consultants are helping families with disabled members qualify for financial and educational aid

A Special Plan
Regarding planning for children with special needs, many clients haven't ever properly addressed the nuances of special needs planning which can be complicated and subject to dangerous misunderstandings.

Academy of Special Needs Planners Featured on CBS TV News - November 27, 2008
ASNP Co-founder Harry S. Margolis appears in a segment titled "Families with Special Needs Kids Seek Advice" on CBS Boston's affiliate News Channel WBZ TV. Follow link above to see the video. Type in "Special Needs Families" in the search field. The story originally aired on the November 27th nightly news program. Click here to read the text version "Special Needs Planners Help Families Get Care".

Caring for a Special Needs Child - Difficult Questions, Difficult Answers (Corp - 9/1/07)
Parents with a special needs child worry most about what will happen to that child when they are no longer able to care for him or her...planning for the child’s life after the parent’s death can become complicated.

An Estate Plan Built for Special Needs (Wall Street Journal)
This is a great summary of what we spend every day doing and it was written with input from some of our friends.

Estate Planning for a Family with a Special Needs Child (ABA - 7/09)
This article is a general overview of issues that a lawyer may need to address when preparing an estate plan for a family with a special needs child.

Estate Planning Strategies for the Special Needs Family (Trust & Estate Planning Law - 4/17/10)
Special children require special estate planning. If the child is receiving government benefits, it is especially important to let family members know that their well-meaning gifts must be carefully planned.

Financial Concerns (Williams Syndrome.org)
As the parent of a child with disabilities, one of your concerns will be to provide for the future for your child. It is important to make sure that all assets are kept out of your disabled child's name (including assets left in a will) so they can maintain financial eligibility for Medicaid and SSI. Currently, assets of just $2000 in your child's name will make them ineligible for SSI.

Financial Planning: Special Needs Trusts (ABA - 2/05)
Much has changed in the emerging area of planning for the disabled.

Financially Preparing for Special-Needs Kids (Elder Law Attorney - 10/20/08)
A good, simple overview of planning for a child with disabilities.

Funding a Special Needs Trust: How Much is Enough? (Academy of Special Needs Planners - Sept. 2007)
As a parent or guardian, you want to ensure that your child with special needs will remain financially secure even when you are no longer there to provide support.

How a "Sole Benefit Trust" Can Either Hurt or Help a Person with Special Needs (Special Needs Answers - 10/23/09)
When helping older clients quickly qualify for Medicaid coverage of long-term care, elder law attorneys often ask right at the outset, "Do you have a relative with special needs?" The reason this question is so important is because under federal Medicaid law, someone applying for Medicaid long-term care (nursing home) benefits can transfer her assets into a special needs trust for the "sole benefit" of a person with disabilities, and that transfer will not disqualify the Medicaid applicant from receiving benefits. In other words, a senior who is willing to give away her assets to a person with special needs, and who meets all the other Medicaid eligibility requirements, can almost always qualify for Medicaid quickly.

How to Plan for the Future of Your Special Needs Child (Today video)
The April 12 show's "Mini Money Makeover" segment was on how to plan for the financial future of your special needs child, and it featured an Ohio mother, Sara George, who has a 30-year-old son, Brad, with Down syndrome.

Knowing a Little About How Special Needs Trusts are Taxed Can be Helpful (Joseph Hoffmann)
Having a little working knowledge about how Trusts are taxed can help you with planning for your special needs person. It will also help you to work more effectively with your accountant, lawyer and trustees.

Maximizing Resources for Your Disabled Child (Legacy - 12/10/08)
A little primer on Special Needs Trusts and how they help families plan for the future of their children with disabilities.

Next Steps: Children can help mom best with advice of a lawyer (Post-Gazette - 11/25/08)
A good summary of Medicaid planning and the use of special needs trusts.

Planning a Future for an Adult Child with Disabilities: Steps to Take Now to Ensure Their Tomorrow (Ohio.gov)
Among the many challenges facing parents of children with special needs is planning for the time when the parents will no longer be around to act as the primary caregivers. A generation of parents who have cared for their children with developmental disabilities at home now face their own old age and the prospect that their children may outlive them.

Planning Ahead for When Your Special Child Turns 18 (Exceptional Parent Magazine)
Planning ahead is wise for all. It is essential for the future of a child with special needs who is about to turn 18. In most states, a child's 18th birthday signifies the moment when that child is legally presumed to be competent to make his or her own medical, financial, and educational decisions. Unless parents take precautionary steps to overcome that legal presumption, their child - legally - could quit school, sign up to purchase expensive toys or leave home.

Planning for IRA Beneficiaries with Disabilities (Oast & Hook Elder Law News - June 2007)
An owner of an IRA needs to be aware of the importance of careful planning when an IRA beneficiary has a disability .

Preserving Disability Benefits When Settling Personal Injury, Divorce & Worker Comp. Claims
(Lawrence A. Friedman, Esq.)
When arranging nearly any kind of payment for a disabled person– whether litigation or administrative award, alimony, child support, gift, or inheritance– lawyers must take account of disability program regulations, which are complex, often defy common sense, and may be at odds with tax considerations.

Planning for the Long Haul (Disability Scoop)
Attorney Diedre Braverman answers questions about guardianship, when and how to set up a special needs trust and who to involve.

Qualified Disability Trusts Can Offer Tax Savings (Special Needs Answers - 4/12/10)
As tax season comes to a close, donors and trustees should be aware that in certain circumstances, a third-party special needs trust may be treated as a "qualified disability trust" for purposes of income taxation. Why should you care? Because a qualified disability trust is allowed to take a much higher personal exemption than a regular trust, resulting in lower income taxes for the trust.

Settlement and Estate Planning to Safeguard Disability Aid (Lawrence A. Friedman, Esq.) (search Articles for title)
Because so many disabled people rely on government programs for housing, food, medical care, day programs and other important benefits, two concerns arise when drawing wills, trusts and settlements that impact a client or client’s loved one with serious disabilities.

Settling Personal Injury, Divorce and Other Claims and Estate Plan to Safeguard Disability Aid
(Lawrence A. Friedman, Esq.) (search Articles for title)
Whether settling a disabled client’s personal injury, divorce, probate, or worker compensation claim or planning an estate, two considerations should be paramount: preserving eligibility for government programs and resolving public benefit liens.

Some Gifts Take More Than They Give (Register-Herald - 12/19/08)
"Families of children with special needs must be very careful about accepting gifts from well meaning friends and family....Families have literally lost thousands of dollars in aid and services because they didn’t know how to plan.”

Special Needs Families - Planning Can Be Complicated (Nest Egg News - 5/22/10)
While a firm foundation in financial planning is crucial for all families, it’s all the more critical to a family with a special-needs child. A family with a child with ongoing medical needs, financial planning requires a separate timeline for the disabled person, in essence requiring the parents/ sponsors to plan for two retirements [theirs and their dependent's].

Special Needs Trust: Avoiding a Malpractice Trap (VA Lawyers Weekly - 3/16/09)
Personal injury lawyers are cautioned against dabbling in the field when they get a settlement or judgment that could jeopardize benefits for a client. They could be doing more harm than good with their personal injury recovery, the experts say.

Special Needs Trust: How to Ensure the Care of Your Disabled Child (Health.com)
Initiate the trust as soon as you determine that your child may not be capable of supporting himself. If your child's development improves and he is able to earn a living, great—the trust can always be dissolved and the funds returned to you or given to the child. Special-needs trusts are complicated animals, however, and rules vary from state to state.

Special Needs Trust Provides Teachable Moments (Wealth Counsel - 5/4/10)
Patti's Comment: This article discusses some of the complex issues that arise in settling a case for a person with a disability.

Special Needs Trust Q&A
What is the best method for reimbursing the guardian of a Special Needs Trust beneficiary for monies spent on behalf of the beneficiary?

Special Needs Trusts Can Provide for Disabled Children (Post-Gazette - 8/18/09)
After eagerly anticipating the birth of their first child seven years ago, Shawn and Sharon Widenhofer found themselves embarking on a parental journey they had not planned for when they learned their daughter, Sarah, had been born with Down syndrome.

Special Needs Trusts: How to Keep Your Win From Becoming Your Client's Loss (Kevin Urbatsch)
Avoiding great hardship for a client who receives certain public benefits requires careful planning.

Special Needs Trusts: The Basics Every Lawyer Should Know (Michele P. Fuller)
Part I: Knowing when a special needs trust may need to be implemented, what it is and how it works in the best interests of your client are essential basics all attorneys should know in order to avoid a client's benefit disqualification.
Part II: What a Special Needs Trust Can Pay For

In part I, the general principals of special needs trust distributions were discussed, as well as in-kind support and maintenance rules, referred to as ISM. Now, in part II, some of the most common requests for distributions will be discussed.

Special Rules Apply for Supporting People with Special Needs (NY1 - 5/27/10)
Putting off preparing for your child's future can ultimately leave them at risk – particularly when it comes to money. While you might think you can provide for them in your will, a person with special needs who qualifies for government aid like Medicaid or Supplemental Security Income can only have a certain amount of money in their name.

The Proper Use of Life Insurance in a Special Needs Trust
This article covers a topic that could help insurance agents really help a very motivated client base -- parents with special needs children.

Think About a Special Needs Trust (Chadd Leadership Blog - 12/3/08)
Ever think about how you will provide for your child with special needs once you are no longer around? Any family with a child who has significant special needs should consider establishing such a trust.

Top 15 Tips for Estate Planners When Planning for Special Needs (Katherine N. Barr, Richard E. Davis, Kristen M. Lewis)
The world of special needs planning has come of age. Once considered a narrow specialty that rarely demanded much of a traditional estate planner's time, understanding how to protect the eligibility of a client's child with a disability for publicly available programs, including health care, is now essential.

Using Annuities for Long-Term Care Planning (Elder Law Weblog - 9/23/08)
Insurance agents and financial institutions often advertise annuities as the perfect way to generate retirement income. While annuities can be a valuable retirement tool, if you are buying an annuity as part of a Medi-Cal planning strategy, you need to fully understand what you are getting.

What is a Special Needs Trust? (Mason Law PC)
A Special Needs Trust, also referred to as a Supplemental Needs Trust, is a trust specially designed to hold assets on behalf of a disabled individual in a manner that will benefit the individual without jeopardizing that individual’s SSI, Medicaid or other government benefits.

What is a Special Needs Trust and How Could it Apply to You? (YouTube video)
Basic info and examples from Shields and Boris law firm.

What is a Special (Supplemental) Needs Trust? (Special Needs Answers)
Special needs trusts (also known as "supplemental needs" trusts) allow a disabled beneficiary to receive gifts, lawsuit settlements, or other funds and yet not lose his or her eligibility for certain government programs. Such trusts are drafted so that the funds will not be considered to belong to the beneficiary in determining eligibility for public benefits.

When is a Special Needs Trust Considered a Qualified Disability Trust for Federal Income Tax Purposes? (JD Supra)
Special needs trusts for younger beneficiaries may be entitled to an income tax break on undistributed income.

When is a Trust a Special Needs Trust (Martindale.com - 8/23/10)
"Special Needs Trust" (SNT, sometimes called a "supplemental needs trust") is a generic term for a trust designed to supplement the means-tested government benefits of a beneficiary with a disability. If you think that none of your clients or their adult children would ever need government benefits, think again. By maintaining eligibility for cash income and health insurance, a family may stretch its collective resources to care for the individual with disabilities over time.
Patti's Comment: A simple description from my friend Janet in Ohio.

Who Can Set Up a Special Needs Trust? (JD Supra)
The answer depends on what type of Special Needs Trust – a Third Party Special Needs Trust or a First Party Trust. A third party trust, that is created to hold assets of another person for the benefit of the person with special needs, can be set up by anyone who is over the age of 18 and has the mental capacity to create such a trust. Typically, a parent or grandparent sets up a third party trust because they are usually the ones who are leaving assets to the person with special needs. However, with older couples, sometimes one spouse sets one up for the surviving spouse. In addition, a friend or other nonrelative may set up a third party special needs trust to be the recipient of gifts from other friends of the person with special needs.

Whole Life Insurance and a Supplemental Special Needs Trust: A Smart Combination for Providing Life-long Care for Family Members with Disabilties
Paying for life-long care for a family member with disabilities can be financially overwhelming. Not knowing how your child will be cared for after you're gone is a heavy burden that weighs on most parents of children with special needs.

Writing a Memorandum of Intent for a Special Needs Child (Donald D. Vanarelli Blog - 11/7/08)
How can you ensure that your special needs child will remain well cared for and secure once others assume the role of guardian or caregiver? Also see sample Letter of Intent.

Publications

Administering a Special Needs Trust - A Handbook for Trustees (2008 Edition)
"Special Needs" trusts are complicated and can be hard to understand and administer. They are like other trusts in many respects - the general rules of trust accounting, law and taxation apply - but unlike more familiar trusts in other respects.

Key Decisions in Setting Up a Special Needs Trust (Special Needs Answers - Sept. 2008)
Although it may sound complicated, at heart a special needs trust is merely a trust established for the benefit of someone with special needs.

Planning with Special Needs Youth Upon Reaching Majority: Education and Other Powers of Attorney
An education power of attorney as an appropriate, but simple planning tool for an adult, mentally competent, disabled child.

Qualified Disability Trusts (Ciota, Starr & Vander Linden - 2/13/08)
Since tax year 2002, trustees of certain trusts for disabled indivdiuals have been able to claim the same personal exemption that an individual may claim.

Special Needs Alliance - The Voice Newsletter (Jan. 2009)
Providing information and answers about special needs planning for family members and professionals.

Special Needs Planning or Life Care Planning Resources (Christopher & Dana Reeve Foundation)
A list of contacts and websites with information related to special needs planning.

Special Needs Trusts Can Help Families Meet Financial Needs (Aiken Standard - 1/10/09)
One of the best ways to deal with the financial needs of the disabled or handicapped person is through a special needs trust.

Third-Party Special Needs Trusts vs. First-Party Special Needs Trusts (JD Supra)
There are two types of special needs trusts – one designed to hold assets gifted or bequeathed to a person with special needs from a third party (a “Third-Party Special Needs Trust”), and one designed to hold assets that are already deemed to be owned by that person with special needs (a “First-Party Special Needs Trust”).

What is a "Qualified Disability Trust" for Federal Income Tax Purposes? (Ron Landsman & Robert Fleming)
Info regarding a small tax benefit for some disabled individuals.

Worst Mistakes Made in Planning and Drafting SNTs (Academy of Special Needs Planners - 7/14/08)
From the National Academy of Elder Law Attorneys Symposium, info on a presentation that focused on "The Top Worst Mistakes Attorneys and Trustees Make When Planning, Drafting or Administering Special Needs Trusts."