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Down syndrome « Disabilities – Conditions

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Articles & Publications and
Organizations & Services
related to Down Syndrome

 

  • Down syndrome (DS), also called Trisomy 21, is a condition in which extra genetic material causes delays in the way a child develops, both mentally and physically. It affects about 1 in every 800 babies.

Articles and Publications About Down syndrome

  • A Very Special Wedding (Time.com – July 2006)
    Meet Carrie and Sug, two very special newlyweds who prove that "Love can't be stopped by cultural differences or different faiths. Love can't be stopped by Down syndrome."
  • Down Syndrome Awareness (Bella Online)
    The National Down Syndrome Congress and National Down Syndrome Society have sponsored yearly national conventions to raise awareness of the latest research, information and support available to teachers, medical professionals, families and individuals with Down syndrome. (Many resources linked from this page.)
  • It's Down syndrome (5 Minutes for Special Needs – 2/17/11)
    It’s a pet peeve of mine.  I’m not really sure why.  Perhaps it’s because technically it is incorrect, even if it is common use.  But every time I see or hear it, I cringe. The fact is, it is not Down’s or even Downs syndrome and “syndrome” is not capitalized.
  • Medicaid Waivers (2/8/09)
    A blog entry from a woman with a child with Down syndrome about Medicaid waivers to help with what insurance won't cover.
  • New Safety, New Concerns in Tests for Down Syndrome (Washington Post – 2/24/09)
    A handful of companies are racing to market a new generation of tests for Down syndrome, a development that promises a safer way to spot the most common genetic cause of mental retardation early in pregnancy even as it weaves a thicket of moral, medical, political and regulatory concerns.
  • She Seriously Makes Me Cry When She Says 'Who Wouldn't Want This Precious Little Boy?' 
    Young girl discusses her love for her adopted brother.
  • Study on Prevalance of Down Syndrome (National Down Syndrome Society – Dec. 2010)
    The Centers for Disease Control and Prevention (CDC) and the National Birth Defects Prevention Network have published a study that updates national statistics regarding the prevalence of Down syndrome in the U.S. 

Organizations & Services  About Down Syndrome

  • Club NDSS
    A website for people with Down Syndrome and other developmental disabilities.
  • DownsEd International
    Works to understand how developmental processes are different for people with Down syndrome and how we can best adapt support and educate to take account of these differences.
  • KidsHealth.org
    Info on Down Syndrome – a condition in which extra genetic material causes delays in the way a child develops, both mentally and physically.
  • National Down Syndrome Congress
    A not-for-profit organization governed by a Board of Directors composed of parents and family members of individuals with Down syndrome, self-advocates and other individuals involved with people with Down syndrome. Its purpose is to promote the interests of people with Down syndrome and their families through advocacy, public awareness, and information dissemination on all aspects of Down syndrome.
  • National Down Syndrome Society
    A national advocate for the value, acceptance and inclusion of people with Down syndrome.
  • Research Down Syndrome
    A non-profit foundation that supports Down syndrome cognitive research, an area that in the last 5 years has experienced great advances towards developing biomedical therapies to treat the cognitive impairment of people of all ages with Down syndrome.

Resources: Websites & Blogs  About Down Syndrome

  • Putting Faces to Down Syndrome (Chase and More)
    Portrays faces of many with Down syndrome to show others the beauty, humanity, and sameness of kids with the extra chromosome.
  • Disability Scoop
    The first nationally focused online news organization serving the developmental disability community, including Down syndrome.
  • Information Connections
    A website for parents of children with developmental disabilities and chronic diseases serves as an information portal to resources with a special focus on autism, cerebral palsy, ADHD, Down syndrome, and traumatic brain injury, among others.
  • Teddy's Ts
    From a 25 year old with Down syndrome who designs and sells Tshirts, as well as speaking at places where people support individuals with disabilities becoming self-employed.
  • The Love Chromosome (Julie's blog)
    I think youll agree that Julie is a very wise and insightful person. Julies Love Chromosome is something she would like to share.