Patricia E. Kefalas Dudek
Advocate for Elders, People
with Disabilities
and Their Families

Disabilities - Autism

also see Autism news

Disabilities Links: IndexADA/OlmsteadAssistive TechnologyAutismAwardsBlindnessBrain InjuryCerebral PalsyDeafnessDevelopment/LearningEmploymentEpilepsyHousingLegalMisc. • OrganizationsSelf-DeterminationWebsites/Blogs
Legal Links
(Related to my
practice areas)




General Information:

The federal definition of autism is as follows:

The Individuals with Disabilities Education Act [IDEA 300.7 ©(1)(i)] defines Autism as "A developmental disability significantly affecting verbal and non-verbal communication and social interaction, generally evident before age three that adversely affects a child's educational performance. Other characteristics often associated with Autism are engagement in repetitive activities and stereotyped movement, resistance to environmental change or change in daily routine, and unusual responses to sensory experiences. The term Autism does not apply if a child's educational performance is adversely affected primarily because the child has an emotional disturbance.

Additionally if they are a California student (I am assuming they are since they qualify for Regional Center) then simply refer to the ed code statues which are more liberal and state that the student does not even have to be diagnosed as autistic rather simply display "autistic like" symptoms. The ed code is below:

(a) For purposes of this chapter, a "pupil with autism" is a pupil who exhibits autistic-like behaviors, including, but not
limited to, any of the following behaviors, or any combination thereof:

(1) An inability to use oral language for appropriate communication.

(2) A history of extreme withdrawal or of relating to people inappropriately, and continued impairment in social interaction from infancy through early childhood.

(3) An obsession to maintain sameness.

(4) Extreme preoccupation with objects, inappropriate use of objects, or both.

(5) Extreme resistance to controls.

(6) A display of peculiar motoric mannerisms and motility patterns.

(7) Self-stimulating, ritualistic behavior.

(b) The definition of "pupil with autism" in subdivision (a) shall not apply for purposes of the determination of eligibility for
services pursuant to the Lanterman Developmental Disabilities Services Act (Division 4.5 (commencing with Section 4500) of the Welfare and Institutions Code).

Articles & Publications

27 Genes (Change.org - 7/16/09)
That's how many genes might be "associated with either Asperger Syndrome (AS) and/or autistic traits and/or empathy" according to a new study in the July 16th Autism Research.
Patti's Comments: Amazing post about new research on Autism!

A Powerful Identity, a Vanishing Diagnosis (New York Times - 11/2/09)
Children with Asperger’s syndrome, a mild form of autism, are socially awkward and often physically clumsy, but many are verbal prodigies, speaking in complex sentences at early ages, reading newspapers fluently by age 5 or 6 and acquiring expertise in some preferred topic — stegosaurs, clipper ships, Interstate highways — that will astonish adults and bore their playmates to tears. In recent years, this once obscure diagnosis, given to more than four times as many boys as girls, has become increasingly common.

An Outbreak of Autism, or a Statistical Fluke? (New York Times - 3/16/09)
Autism is terrifying the community of Somali immigrants in Minneapolis, and some pediatricians and educators have joined parents in raising the alarm. But public health experts say it is hard to tell whether the apparent surge of cases is an actual outbreak, with a cause that can be addressed, or just a statistical fluke.
Patti's Comment: What do you folks think about this??? It kind of surprises me!

Ask the taxgirl: Autism & Special Needs Children
Can tuition in a private preschool with a program specifically for children with autism be tax deductible?

Autism and Girls, Women, Females in General (apsieSocial - 1/26/08)
Autism manifests differently in females than it does in males. Because of this small but extremely essential difference, girls... in general are much harder to diagnose with autism, hence the 1 to 4 statistics of female and male diagnosed.

Autistic Adults Present a Growing Care Dilemma (KPBS - 11/12/09)
People are typically diagnosed with autism when they're very young. But kids grow up, and kids with autism carry their disability into adult life. What happens when autistic kids become adults, and still need a lot of care?

Autistic License Play
A docudrama, true-to-life play that takes audiences on the rollercoaster ride of raising a child with Autism. It's a sometimes exhausting, sometimes exhilarating, frequently terrifying trip that informs, enlightens and entertains.

Blasting Stereotypes in Autistic Females (Change.org - 3/24/09)
It's no secret that more males than females are diagnosed as being on the autism spectrum. Evidence shows that there are differing behaviors between autistic males and females.

Children with Autism
The Government Accountability Office conducted a study on educating children with autism and quotes information from the NRC study.

Couple Lives with Autism, Comfort of Each Other (ABCNews.com - 2/25/09)
David Hamrick, 29, and Lindsey Nebeker, 27, look like a typical couple in love, but what's not apparent is how hard they've worked to be together.

Cyber Scout Puts Autism Studies on Faster Track (NPR - 4/8/09)
Scientists researching autism are getting help from a friend in cyberspace.
Patti's Comment: Great article about a network of families.

Disability Models, Tragedy and Identity (Change.org - 3/2209)
The social model of disability can be contrasted with the medical model. The medical model views disability as a flaw in a person that can be cured by some form of medical treatment; the social model views disability as a flaw in the way society treats a person that can be cured by some form of accommodation.
Patti's Comment: This is a great summary of the support model rather than the medical model of support for people with disabilities.

Drugs Hint at Potential Reversal of Autism (NPR - 8/23/08)
A director of the Picower Institute for Learning and Memory at MIT has discovered a system in the brain that could change the lives of thousands of people with the genetic disorder known as Fragile X Syndrome, a mutation on the X chromosome that can cause mental retardation and autism. Until now, there has been no treatment.

Envisioning a Bright Future: Interventions That Work with Children and Adults with Autism Spectrum Disorders
Patti's Comment: This is a book that's available for sale, but I still wanted to share what looks like a valuable resource.

Grassroots Advocacy 101 (Autism Society of America)
The Autism Society has released the first edition of the “Grassroots Advocacy 101” handbook. Jeff Sell, Autism Society Vice President of Advocacy and Public Policy, drew on his skills as an attorney, former policy maker and advocate to write this helpful document, intended to help Autism Society chapters and concerned individuals more effectively advocate at the federal level, as well as provide basic information on how federal policy gets made and other more advanced resources.

Hyperbaric Autism Treatment Shows Possible Promise (ABC News - 3/13/09)
Info about treatment in a hyperbaric chamber, where pressure is increased in an attempt to boost the amount of oxygen in the child's brain.

Is Vision Therapy Right for Your Child? (Autism and the World Around Me - 3/9/09)
Many of the behavioral characteristics of those with autism spectrum disorders do involve the visual system as well. Poor eye contact, staring at lights or spinning objects, side viewing, and other general difficulties are often symptoms of visual dysfunction.
Patti's Comment: I had never heard of this before reading the post above. Have any of you ever tried this? Please share your success stories with us!!

Magic in the Water (Baltimore Sun - 1/5/09)
Trips to the National Aquarium are key to a Kennedy Krieger program that helps autistic youngsters master social skills.

New Studies Chronicle Stress in Mothers of Autistic Children (WKOWTV.com) - 11/10/09
A new pair of studies from the University of Wisconsin chronicle the daily physiological and psychological toll on mothers of adolescents and adults with autism. The studies reveal patterns of chronic stress, fatigue, work interruptions and a significantly greater investment of time in care giving than mothers of children without disabilities.

No Myths (Public Service Announcement)
Offers a refreshingly positive and optimistic view about life with autism. And it was written and performed by people who should know--individuals who are on the autism spectrum themselves. The purpose of the PSA is to tell society that, with the right supports, people with autism can do anything anybody else can do, even if it isn't in the same way.

PICA Disorder
Many children that have sensory related issues /Autism deal with this disorder as well. Some are more severe then others.

Students With Autism Learn Business, Life Skills at Seaholm (Detroit News - 1/26/10)
High-functioning autistic adults can offer employers sought-after skills, such as intense attention to detail, a single-minded focus and a willingness to work on something until perfection.

Teaching Autistic Teens to Make Friends (Science Daily - 4/8/09)
It's hard enough to be a teenager...but it's harder still for adolescents with autism because they typically lack the ability to pick up on all the social cues most of us take for granted.

Teaching Kids with Autism the Art of Conversation
A team of researchers at Baltimore's Kennedy Krieger Institute has developed a course to help kids with autism improve their social skills.

The Voices and Choices of Autism
Learning to exist with hope and joy in a world that's not always your "friend."

Tips for Teaching High Functioning People with Autism (O.A.S.I.S.)
People with autism have trouble with organizational skills , regardless of their intelligence and/or age. Even a "straight A" student with autism who has a photographic memory can be incapable of remembering to bring a pencil to class or of remembering a deadline for an assignment.

Try Anything and Everything for Autism (New York Times - 1/19/09)
If anything definitive can be said of the popular therapies for autism, it is that treatments have to be individualized.

Two Area Young Men are National Merit Semi-Finalists (CourierLeader - 3/9/09)
Two area high school students, both with Asperger's Syndrome, a form of autism, have been named National Merit semi-finalists. Each scored in the Top 1 percent of high school students nationally on their preliminary SAT exams, qualifying them for the National Merit Scholarship Program.
Patti's Comments: Congratulations to these young men!

Underdiagnosed Girls With Autism Struggle to Fit In (ABC News - 1/23/08)
At first glance, 8-year-old Kaede Sakai is a typical first grader. She's a smart student, and most of the time she is kind and cordial in class. But recess is an exercise in frustration for her because no matter how hard she tries to fit in, she just doesn't click with the other kids.

What Autistic Girls are Made of (New York Times - 8/5/07)
It was a small, casual encounter and also an exceedingly rare one — a taste of teenage patter shared by two autistic girls.

What's In a Name (Autism Support Network - 6/13/09)
Think about the students in special education and their labels; the identified students, the severes, the BDs and, of course, the autistics!! What images or feelings do those labels create? What do labels do? How are they used? Are they helpful?

When It Hurts (TeenAutism.com)
Sometimes, when you’re the parent of a teen with autism, you have to write letters like this...

Organizations and Services

Autism 360
A unique tool which provides an accurate report that captures the details of your child's or your own individuality and offers treatment options that have worked for others with closely matching records.

Autism Family Online
Working together to meet the challenges and share the triumphs of autism.

Autism Risk & Safety Management
Autism training and resources for law enforcement, emergency first responders, parents, educators, care providers, and the autism community.

Autism Safety Toolkit (National Autism Assn.)
To ensure safety and lower risk for a child or adult with autism, parents and care providers will need to become proactive and prepare an informational handout, outlined here.

Autism Self-Advocacy Network
A non-profit organization run by and for autistic people. Activities include public policy advocacy, community engagement, quality of life oriented research and the development of autistic cultural activities.

Autism Society of America
Improving the lives of all affected by autism by increasing public awareness about the day-to-day issues faced by people on the spectrum, and providing the latest information regarding treatment, education, research and advocacy.

Autism Speaks
Dedicated to funding global biomedical research into the causes, prevention, treatments, and cure for autism; to raising public awareness about autism and its effects on individuals, families, and society; and to bringing hope to all who deal with the hardships of this disorder.

Autism Support Network
Connects families and individuals touched by ASD with each other, provides support and insight, and acts as a resource guide for treatments, strategies and therapies for autism. Patti's comments: This is a great resource for planning for social goals in education.

CareTrak Systems
Families with children affected by autism have used the Home Perimeter Sysem to alert them if the child leaves the yard, giving them the ability to actually track their child up to a mile away.

Generation Rescue
Jenny McCarthy's autism organization - an international movement of scientists, physicians and parent-volunteers researching the causes and treatments for autism and mentoring thousands of families in recovering their children from autism.

Gluten Free Casein Free Food
The official GFCF diet support group re: dietary intervention treatment for
autistic spectrum disorders. Suggested by The Autism Research Institute & DAN! Practitioners, dietary intervention may be that one piece of "the puzzle" which helps a child with ASD toward the road for recovery.

Interactive Autism Network
An innovative online project bringing together tens of thousands of people affected by autism spectrum disorders and hundreds of researchers in a search for answers.

Marino Autism Research
The first philanthropically funded “virtual institute” designed to develop and implement cutting-edge research, including clinical studies and training, to address key questions about the causes of autism spectrum disorder and their treatment.

National Autistic Society
Champions the rights and interests of all people with autism and aims to provide individuals with autism and their families with help, support and services that they can access, trust and rely upon and which can make a positive difference to their lives.

National Institutes of Health (Autism info)
Info and links.

Online Asperger Syndrome Information & Support (O.A.S.I.S.)
From the founder: Although recently reminded that there is no oasis or paradise for those with Asperger Syndrome, I sincerely hope that they, along with parents and professionals, will find a bit of shade and support via the information presented and links available at this site.

Unlocking Autism
One goal of this organization is to bring the issues of autism from individual homes to the forefront of national dialogue.
Websites & Blogs

Another Piece of the Puzzle (blog)
The life and times of an introverted bookworm turned passionate autism mom.

Autism and the World Around Me
The story of two autistic ADHD boys from ages 5 and 7 onward who has struggled through many difficulties. We talk about Autism, ADHD, Feingold Diet, GFCF diet, autism news, ADHD news, advertising, communication, family, kids, adults, books, friends, and research.

Autism Bloggers
This is the home site for the Autism Support Netring. If you have a site dedicated to autism, then this is the ring for you. Powered By Ringsurf

Autism Interrupted (blog)
From a mom of a 7 year old son with autism.

Autism Risk & Safety Management
Autism training and resources for law enforcement, emergency first responders, parents, educators, care provides, and the autism community.

Disability Scoop
The first nationally focused online news organization serving the developmental disability community including autism and fragile X, among others.

Go to the Back of the Bus! (One Dad's Opinion Blog - Sept. 2007)
Regulations Proposed to Eliminate Federal Medicaid Reimbursement to Schools - an opinion from a dad raising an autistic child.

New England Autism Examiner
A resource by the co-founder of the Autism Support Network.

StimTalk (blog)
All Autism - all the time - to teach and share information, to listen and support, to give you options, to give you hope.

Teen Autism
This mom decided to start the Teen Autism blog as a way to connect with other parents of autistic teens, to gain insight from those who have been through the teen years, as well as to offer encouragement to those just entering them.

WrongPlanet.net (forum)
A web community designed for individuals (and parents of those) with Autism, Asperger's Syndrome, ADHD, PDDs, and other neurological differences.

 
Powered by WebRing.
Personal Links
(Get to know me outside the office)


Networking Sites:

Blog
Facebook
Linked In
Twitter
LawLink
Aging Pro
Meet the Elite

My Favorites:
  
Book Reviews
  Favorite Quotes
  Funnies
  Movie Reviews
  Music Reviews
  Websites/Blogs

Miscellaneous:

Family Matters &
Personal Insights


 


Search:

To find your areas of interest on either my website or blog, use search buttons below:



Website


Blog


 

Disabilities Links: IndexADA/OlmsteadAssistive TechnologyAutismAwardsBlindnessBrain InjuryCerebral PalsyDeafnessDevelopment/LearningEmploymentEpilepsyHousingLegalMisc. • OrganizationsSelf-DeterminationWebsites/Blogs