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Academy
of Special Needs Planners Featured on CBS TV News - November
27, 2008 ASNP Co-founder Harry
S. Margolis appears in a segment titled "Families with Special Needs Kids
Seek Advice" on CBS Boston's affiliate News Channel WBZ TV. Follow link above
to see the video. Type in "Special Needs Families" in the search field.
The story originally aired on the November 27th nightly news program. Click
here to read the text version "Special Needs Planners Help Families Get
Care". Better
Mental Health for Kids (Boston.com
- Oct. 1, 2007) Children
with serious mental illnesses have been waiting for years for the state to honor
its responsibilities to them under federal law. Bush
Veto of Children's Health Bill Sets Stage for Political Confrontation
(The Commonwealth Fund - Oct. 9, 2007) President Bush vetoed
legislation to expand a children's health insurance program, drawing immediate
fire from congressional Democrats and setting up an override showdown that could
be politically perilous for some Republicans. Chance
at Childhood School
Personnel Guide for Reporting Suspected Child Abuse and Neglect. Children
with Autism The Government
Accountability Office conducted a study on educating children with autism and
quotes information from the NRC study. Community
Resource Guide - 2007-2008
(The Guidance Center) Creating
a Path to Employment - (Office
of Disability Employment Policy - 9/08) Tips for parents with children with
disabilities.
Diabetes
and the Law (American
Diabetes Assn.) Real life examples of problems that children with diabetes
have faced. Diabetes
Medical Management Plan for a Student with Diabetes (American
Diabetes Association) The
above links provides samples of both the Section 504 Plan and Diabetes Medical
Management Plan which detail typical medical and academic needs of a child with
diabetes at school. More
info on Section 504 by Claudia Lowe. Diagnostic
Criteria for Attention Deficit Disorder From
David Rabiner, Ph.D., Senior Research Scientist at Duke University. Financially
Preparing for Special-Needs Kids (Elder
Law Attorney - 10/20/08)
A good, simple overview of planning
for a child with disabilities. Funding
a Special Needs Trust: How Much is Enough? (Academy
of Special Needs Planners - Sept. 2007)
As a parent or guardian, you want to
ensure that your child with special needs will remain financially secure even
when you are no longer there to provide support. Girl,
10, Who Could Die From Shock Just by Watching a Scary Film
(Daily Mail - Feb. 6, 2008) Jennifer is one of just six known
sufferers of polyglandular Addison's disease, which causes her to become ill whenever
she is surprised or shocked. Go
to the Back of the Bus! (One
Dad's Opinion Blog - Sept. 2007)
Regulations Proposed to Eliminate Federal
Medicaid Reimbursement to Schools - an opinion from a dad raising an autistic
child. Impact
of Early Intervention on Outcome After Mild Traumatic Brain Injury
(American Academy of Petiatrics) A basic article on mild traumatic
brain injury (TBI) and early intervention. Justice
Department Settles Disability Rights Case With National Provider of Retirement
Housing Announcement of settlement agreement with the owners of Phoenix
Village Apartments in Fort Smith, Arkansas. They had refused to rent apartments
to families with children. The defendants will pay up to $165,000 to compensate
the victims of discrimination and $20,000 in civil penalties to the United States.
Note that Michigan is one of the states involved. Planning
Matters: How to Provide for Special-Needs Children
(The Times Herald.com - 12/28/08) You may have a special-needs child who is
developmentally disabled or legally incapacitated. This child also may be on some
form of governmental assistance, such as Supplemental Security Income, Social
Security Disability Income or Medicaid. Planning
with Special Needs Youth Upon Reaching Majority: Education and Other Powers of
Attorney An education power of attorney as an appropriate, but
simple planning tool for an adult, mentally competent, disabled child. QuickRamps
for Kids (United Cerebral
Palsy of Metropolitan Detroit) This program provides portable wheelchair ramps
to families of children with Cerebral Palsy and other paralysis-causing conditions.
Click here
for application. Researcher
Helps Develop Computer Game for Children Recovering From Malaria
(MSU Today - 10/26/07) The computer program Captains Log
originally used with individuals diagnosed with attention deficit hyperactivity
disorder, brain injuries or learning disabilities is being adapted to rehabilitate
Ugandan children who are survivors of cerebral malaria. Some
Gifts Take More Than They Give (Register-Herald - 12/19/08) Donors could
inadvertently be imposing a burden, particularly if the family receives any kind
of special financial benefits such as Social Security or money provided by the
Department of Health and Human Resources.
Special
Needs Trusts Helps Provide for Disabled Children (STL Today )
Nearly all parents of disabled children have worried about the day they won't
be around to help care for their sons or daughters, whether the children are 6
or 60. Summer
Camp '08 (Family
Center on Technology and Disability) I know nothing about this camp, so
this in not an endorsement of any kind. If any of you have had good or bad experiences
with this camp or others you would like to post, please feel free to do so. There
are valuable resources at the back of the newsletter re: how to choose the best
camp for your child. The
Next Attention Deficit Disorder?
(Time.com - 11/29/07) Info on Sensory Processing Disorder (SPD). Thousands
of Kids with Special Needs are Living in Nursing Homes
(Wall Street Journal - 7/07) While the Medicaid program guarantees
long-term care for the disabled, many states have insufficient resources to pay
for care at home. As a consequence, families with children who have severe disabilities
are often forced to place their children in nursing homes primarily meant for
the elderly in order for the children to get the care they need. An online subscription
to the Wall Street Journal is required to read the full article. Writing
a Memorandum of Intent for a Special Needs Child (Donald D. Vanarelli Blog
- 11/7/08) How can you ensure that your special needs child will remain well
cared for and secure once others assume the role of guardian or caregiver? |