Patricia E. Kefalas Dudek
Advocate for Elders, People
with Disabilities
and Their Families

Children - Special Needs

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Articles & Publications, Organizations & Services, Resources
Legal Links
(Related to my
practice areas)




Articles & Publications

A Checklist of Tax Benefits for Parents of Special Needs Children (Special Needs Answers - Oct. 2007)
Unique tax benefits are available to families with individuals who have special needs.

A Primer for Parents with a Child With Special Needs (EP Magazine - 11/07)
As the parent of a child with special needs with a lifetime of financial requirements, you can't ignore wealth management issues and public benefit preservation techniques.

Aid for Haiti - Childhood Disability (Bella Online)
As we reach out to the people of Haiti who are suffering from the loss and devastation of the 2010 earthquake, we are learning more about religious and secular organizations specifically dedicated to children with disabilities and their families that were already 'on the ground' providing housing, education, medical support and other essential services.

Adopting a Special Needs Child (Filthy Lucre - 1/6/09)
A review on the literature on the topic of parental adoption of children with special needs.

Automotive Safety Program (Nat'l Center for the Safe Transportation of Children With Special Health Care Needs)
Regardless of whether or not a child's medical condition presents short-term or long-term challenges, a child should travel in a restraint system that provides optimum protection. Oftentimes, a conventional child safety seat will meet the safety and positioning needs of a child with special health care needs. Other times, an adaptive or specialized restraint will be necessary.

Car Seats for Children with Special Needs (American Academy of Pediatrics)
For children with special needs finding the right car seat can be difficult and expensive. Pediatric occupational and physical therapists can help to determine what seating systems may work the best for a specific child. In addition, therapists may want to remind parents to evaluate the car seats when there is an upcoming surgical or medical procedure scheduled. Casts or new braces may restrict the use of a current car seat.

Children and Sign Language (Bella Online)
More preschoolers, kindergarteners and primary grade children are using sign language today than ever before.

Children's Books About Kids with Disabilities (Easy Stand Blog)
There are a lot of great books available that can educate kids about others like them who have a disability.

Creating a Path to Employment - (Office of Disability Employment Policy - 9/08) - Tips for parents with children with disabilities.

Exceptional Parent Magazine
The family and professional site for the special needs community.

Guidelines: Maltreatment of Children with Disabilities

Horses Help Youngsters Cope With Disabilities (SI Live.com)
Children suffering with disabilities like autism and cerebral palsy can find therapy through a program called H.O.O.P.H. operated by the Staten Island Recreation Association.

Impact of Early Intervention on Outcome After Mild Traumatic Brain Injury in Children (American Academy of Petiatrics)
A basic article on mild traumatic brain injury (TBI) and early intervention.

Make sure you protect your special needs child!
You're taking care of your disabled child and hopefully, you're doing okay. But what will happen when you're gone? If you plan ahead, you should be able to make sure your child is protected.

Movie Highlights Kids with Disabilities and Art as Therapy
A new documentary is coming out that highlights kids with disabilities and how art therapy can help. It is an inspiring and heartwarming movie about a wonderful art teacher and some pretty amazing students.

Nintendo Wii Therapy Rehab for Children and Teens (Bella Online)
Children and teens who have physical, sensory or intellectual disabilities find the same benefit in playing games with the Nintendo Wii game system as their mainstream peers. The Wii's wireless remote control rather amazingly detects directionality and the speed of acceleration in movements, and the game can provide non-judgmental feedback on physical moves and performance.

Occupational Therapy Briefs
A collection of critically appraised topics (CAT) in occupational therapy.

Orthotics and Shoe Inserts for Children (Bella Online)
There are few magazine articles that mention these commonly used shoe inserts that do make a difference to children with cerebral palsy, Down syndrome or other disorders; those who have challenges related to injury or serious illness; and teens who have pain or discomfort due to walking differently during early childhood and beyond.

Parent to Parent Helps Families with Special Needs Kids (9News.com)
A parent initiated, parent controlled organization that builds inclusive communities, supports its members and takes effective and constructive group action on behalf of family members with disabilities and special health care needs.

Parents of Children with Special Needs Entitled to Income Tax Benefits (2/10/09)
A PowerPoint presentation by Cynthia Sharp with Academy of Special Needs Planners regarding tax issues for parents who have taxable estates and children with special needs. Audio of this presentation and others can be found on ASNP website.

Service Dog Etiquette (Bella Online)
The first thing we should consider when teaching adults and children service dog etiquette is that it develops naturally from respectful and considerate behavior toward the dog handler who is a person with a disability. While none of us would presume to handle or interfere with a person's wheelchair controls, white cane or hearing aide, our first impulse may be to respond to or interact with service dogs as if they are pets. Children can often recognize and remember rules associated with working service animals better than adults, and may remind their parents that a working dog has a job to do that requires concentration and interaction only with its handler.

Sexual Assault of Kids with Disabilities
Sexual assault of kids w/disabilities in k-12 schools is a serious problem. As with colleges and universities, it is often intentionally swept under the rug. Although the study USDOE was forced to commission pursuant to NCLB showed molestation of disabled kids at staggeringly high rates - see Educator Sexual Misconduct (whole report) and Disability and Sexual Abuse: Reported Cases, to the best of my knowledge - USDOE thereafter did absolutely nothing at all about this serious problem.

Tax Benefits for Parents of Kids with LD: 2009 Update (Great Schools.org)
Parents of children with a severe learning disability may be eligible for valuable tax benefits.

Thousands of Kids with Special Needs are Living in Nursing Homes (Wall Street Journal - 7/07)
While the Medicaid program guarantees long-term care for the disabled, many states have insufficient resources to pay for care at home. As a consequence, families with children who have severe disabilities are often forced to place their children in nursing homes primarily meant for the elderly in order for the children to get the care they need. A free online subscription to the Wall Street Journal is required to read the full article.

Voices of Disability: 'Relentless' Parents Help Deaf Son Build Successful LIfe (Oakland Press - 3/15/09)
Martin Levin, an optometrist, and his wife, Mollene, an artist and former teacher, said they helped their son, now 32 and who will be married June 6 to Hillary Fisher, by “trying to take on the burden of what was going on.”
Patti's Comments: Congratulations to this family. Relentless parents are challenging clients, but I love to help them in their support of their kids.

What is Dwarfism?
There’s been a lot of discussion over the years about the proper way to refer to a child with dwarfism.

Organizations & Services

Arizona Foundation for Burns and Trauma
The Yuma Child Burn Survivor Campaign is part of this great organization. Read about their "Camp Courage" program and the opportunity to help sponsor this worthwhile event.

Care House.Org (The home of the Child Abuse and Neglect Council of Oakland County)
A leading resource in the prevention of child abuse and neglect, and the protection of children through advocacy, education, intervention, research, and treatment, in collaboration with the community.

Child Care Law Center - Children with Disabilities
Families of children with disabilities face formidable obstacles in securing accessible, affordable, and high quality child care. Several federal laws, including the Americans with Disabilities Act (ADA) and the Individuals with Disabilities Education Act (IDEA), are important tools in helping these families, especially when families know their rights, child care providers understand their responsibilities, and the law is enforced. CCLC publishes materials for parents and providers explaining the law, offers training, and serves as a technical resource on disability issues in the context of child care.

National Center for the Safe Transportation of Children with Special Health Care Needs
Regardless of whether or not a child's medical condition presents short-term or long-term challenges, a child should travel in a restraint system that provides optimum protection. Oftentimes, a conventional child safety seat will meet the safety and positioning needs of a child with special health care needs. Other times, an adaptive or specialized restraint will be necessary.

National Dissemination Center for Children with Disabilities
A central source of information on disabilities in youth, related laws and information.

Parlerai
Parlerai creates a secure network of family, friends and caregivers surrounding a child with special needs using innovative and highly personalized tools to enhance collaboration and provide a safe means of communicating via the Internet.

QuickRamps for Kids (United Cerebral Palsy of Metropolitan Detroit)
This program provides portable wheelchair ramps to families of children with Cerebral Palsy and other paralysis-causing conditions. Click here for application.

Selective Mutism Anxiety Research & Treatment Center
A comprehensive treatment and research center focused exclusively on the anxiety disorder, Selective Mutism in young children and teenagers.

Selective Mutism.Org (SMG)
A resource for SM information, providing a network of families and treating professionals across the world who uniquely understand the struggles of SM.

Summer Camp '08 (Family Center on Technology and Disability)
Patti's comment: I know nothing about this camp, so this in not an endorsement of any kind. If any of you have had good or bad experiences with this camp or others you would like to post, please feel free to do so. There are valuable resources at the back of the newsletter re: how to choose the best camp for your child.

The First Tee
Provides young people of all backgrounds an opportunity to develop life-enhancing values such as confidence, perseverance and judgment through golf and character education.

Variety (The Children's Charity of Greater Philadelphia)
Variety's goal is to empower its children to live life as a participant, not as a spectator.
See article re: Blue Cross RiverRink
Patti's Comments: This is a nice service, but I really like the goal of the agency. Have any of you folks seen anything similarly inspiring?

Websites, Blogs & Newsletters

5 Minutes for Special Needs (blog)
Support, Insight, Inspiration

Bloom (Parenting Kids with Disabilities)
Determined to change what she believes is systemic discrimination against treating children with certain genetic conditions, Barb shares her daughter Annie’s story at health-care conferences and ethics talks, with medical and law students, in medical journals and through her work with Patients for Patient Safety Canada.

Children with Disabilities (ForThePeople.com)
An extensive information database about disabilities, including ADD and ADHD.

Dance of Partnership
Janice Fialka is a national trainer and advocate on issues related to disability.

Family Center on Technology and Disability
A resource designed to support organizations and programs that work with families of children and youth with disabilities. Also, check out their informative monthly newsletters.

Family Voices Indiana (blog)
Family Voices of Indiana shares advocacy opportunities and updated information on issues that impact Indiana families of children with disabilities or special needs.

Life With My Special Ks (blog)
Join us as we face issues with Down syndrome, Leukemia, Deployments, and every day life with 4 young kids! You'll be in for the ride of your life!

Mom on a Mission (Michele Westmaas blog)
Thoughts and insights from a mom, wife, and disability advocate.

Special Needs Children Site (Bella Online)
Valuable articles and info.

Special Needs Neighborhood.com Blog
Special needs resources, news and more.

Uniquely Gifted
A collection of resources for families with gifted/special needs children and professionals who work with them.

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