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Anopthalmia
or Microphthalmia (National Eye Institute)
This information was developed to help patients and their
families search for general information about anophthalmia
and microphthalmia. See related info below:
Born
Without Eyes and Ultrasound Couldn't See (ABC News - 1/28/10)
This rare diagnosis was one that is almost always missed by
ultrasound -- even though hundreds of genetic diseases and
deformities once discovered at birth can now be detected with
the latest ultrasound technology.
International
Children's anophthalmia & Micropthalmia Network
This website was designed to help you learn more about A/M.
Bush
Veto of Children's Health Bill Sets Stage for Political Confrontation
(The Commonwealth Fund - Oct. 9, 2007)
President Bush vetoed legislation to expand a children's health
insurance program, drawing immediate fire from congressional
Democrats and setting up an override showdown that could be
politically perilous for some Republicans.
Children's
Special Services (TN Department of Health)
CSS provides services to eligible children with special health
care needs. CSS has three components: medical services, care
coordination, and the Parents Encouraging Parents program.
Diabetes
Medical Management Plan for a Student with Diabetes
(American Diabetes
Association)
The above links provides samples of both the Section 504 Plan
and Diabetes Medical Management Plan which detail typical
medical and academic needs of a child with diabetes at school.
More
info on Section 504 by Claudia Lowe.
Girl,
10, Who Could Die From Shock Just by Watching a Scary Film
(Daily Mail - Feb. 6, 2008)
Jennifer is one of just six known sufferers of polyglandular
Addison's disease, which causes her to become ill whenever
she is surprised or shocked.
Just
For Kids Foundation
A non-profit foundation dedicated to bringing smiles to children
as they confront their medical challenges. We fulfill wishes
which can vary from the security of a support group to vacations
for the while family. Our goal is to bring moments of joy
by fulfilling the wishes of some very deserving children.
Nursing
Management of Children with Asthma (Suite 101.com)
It is important to treat children with asthma promptly because
they have narrow airways. This means attacks adults handle
easily can cause serious problems in children.
Researcher
Helps Develop Computer Game for Children Recovering From Malaria
(MSU Today - 10/26/07)
The computer program Captain’s Log – originally
used with individuals diagnosed with attention deficit hyperactivity
disorder, brain injuries or learning disabilities – is
being adapted to rehabilitate Ugandan children who are survivors
of cerebral malaria.
Report:
Kids with Health Insurance Get Needed Care, While Uninsured
Kids Go Without
A report released by the Robert Wood Johnson Foundation shows
that uninsured children are three times more likely not to
visit a doctor's office in the course of a year than are insured
children.
The
Project - The Children's Rare Disease Network
To impact the lives of children with rare disease, their families
and the organizations that support them by building greater
awareness related to the prevalence of rare diseases and by
becoming a catalyst for funding their critical efforts.
Xeroderma
Pigmentosum Support Group
A UK charitable trust founded parents of a child with XP.
It aims to relieve the needs of persons with Xeroderma Pigmentosum
and other related conditions and their families.
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