Anopthalmia or Microphthalmia (National Eye Institute)
This information was developed to help patients and their families search for general information about anophthalmia and microphthalmia. See related info below:
Born Without Eyes and Ultrasound Couldn't See (ABC News - 1/28/10)
This rare diagnosis was one that is almost always missed by ultrasound -- even though hundreds of genetic diseases and deformities once discovered at birth can now be detected with the latest ultrasound technology.
International Children's anophthalmia & Micropthalmia Network
This website was designed to help you learn more about A/M.

Bush Veto of Children's Health Bill Sets Stage for Political Confrontation (The Commonwealth Fund - Oct. 9, 2007)
President Bush vetoed legislation to expand a children's health insurance program, drawing immediate fire from congressional Democrats and setting up an override showdown that could be politically perilous for some Republicans.

Children's Special Services (TN Department of Health)
CSS provides services to eligible children with special health care needs. CSS has three components: medical services, care coordination, and the Parents Encouraging Parents program.

Diabetes and the Law (American Diabetes Assn.)
Real life examples of problems that children with diabetes have faced.

Diabetes Medical Management Plan for a Student with Diabetes (American Diabetes Association)
The above links provides samples of both the Section 504 Plan and Diabetes Medical Management Plan which detail typical medical and academic needs of a child with diabetes at school. More info on Section 504 by Claudia Lowe.

Girl, 10, Who Could Die From Shock Just by Watching a Scary Film (Daily Mail - Feb. 6, 2008)
Jennifer is one of just six known sufferers of polyglandular Addison's disease, which causes her to become ill whenever she is surprised or shocked.

Nursing Management of Children with Asthma (Suite 101.com)
It is important to treat children with asthma promptly because they have narrow airways. This means attacks adults handle easily can cause serious problems in children.

Researcher Helps Develop Computer Game for Children Recovering From Malaria (MSU Today - 10/26/07)
The computer program Captain’s Log – originally used with individuals diagnosed with attention deficit hyperactivity disorder, brain injuries or learning disabilities – is being adapted to rehabilitate Ugandan children who are survivors of cerebral malaria.

SCHIP and Medicaid Serve as Lifeline for Children with Chronic Conditions
A report released by the Robert Wood Johnson Foundation shows that uninsured children are three times more likely not to visit a doctor's office in the course of a year than are insured children.

The Project - The Children's Rare Disease Network
To impact the lives of children with rare disease, their families and the organizations that support them by building greater awareness related to the prevalence of rare diseases and by becoming a catalyst for funding their critical efforts.

Xeroderma Pigmentosum Support Group
A UK charitable trust founded parents of a child with XP. It aims to relieve the needs of persons with Xeroderma Pigmentosum and other related conditions and their families.

American Academy of Child and Adolescent Psychiatry (AACAP)
A national professional medical association dedicated to treating and improving the quality of life for children, adolescents, and families affected by these disorders.

Association for Children's Mental Health
A statewide (Michigan) organization of the Federation of Families for Children's Mental Health.

Better Mental Health for Kids (Boston.com - Oct. 1, 2007)
Children with serious mental illnesses have been waiting for years for the state to honor its responsibilities to them under federal law.