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Organizations (Children – Disabilities) « Children – Disabilities

children-disabilities

 

Organizations & Services
for Children with Special Needs

 

  • Arizona Foundation for Burns and Trauma
    The Yuma Child Burn Survivor Campaign is part of this great organization. Read about their "Camp Courage" program and the opportunity to help sponsor this worthwhile event.
  • Automotive Safety Program (Nat'l Center for the Safe Transportation of Children With Special Health Care Needs)
    Regardless of whether or not a child's medical condition presents short-term or long-term challenges, a child should travel in a restraint system that provides optimum protection. Oftentimes, a conventional child safety seat will meet the safety and positioning needs of a child with special health care needs. Other times, an adaptive or specialized restraint will be necessary.
  • Bonnell Foundation – Roadmap to CF
    Mission is to build relationships between parents of children with cystic fibrosis, especially with parents who have children newly diagnosed. To help find a cure for Cystic Fibrosis so that one day no CF parent will experience the pain and loss of losing a child to this disease.
    Patti's Comment: I am on the Board of this fine, non-profit foundation.
  • Car Seats for Children with Special Needs (American Academy of Pediatrics)
    For children with special needs finding the right car seat can be difficult and expensive. Pediatric occupational and physical therapists can help to determine what seating systems may work the best for a specific child. In addition, therapists may want to remind parents to evaluate the car seats when there is an upcoming surgical or medical procedure scheduled. Casts or new braces may restrict the use of a current car seat.
  • Care House.Org (The home of the Child Abuse and Neglect Council of Oakland County)
    A leading resource in the prevention of child abuse and neglect, and the protection of children through advocacy, education, intervention, research, and treatment, in collaboration with the community.
  • Child Care Law Center – Children with Disabilities
    Families of children with disabilities face formidable obstacles in securing accessible, affordable, and high quality child care. Several federal laws, including the Americans with Disabilities Act (ADA) and the Individuals with Disabilities Education Act (IDEA), are important tools in helping these families, especially when families know their rights, child care providers understand their responsibilities, and the law is enforced. CCLC publishes materials for parents and providers explaining the law, offers training, and serves as a technical resource on disability issues in the context of child care.
  • Kids Together, Inc.
    A great resource to support and improve the quality of life for people with disabilities, both children and adults. Their mission is: "To promote inclusive communities where all people belong."
  • National Center for the Safe Transportation of Children with Special Health Care Needs
    Regardless of whether or not a child's medical condition presents short-term or long-term challenges, a child should travel in a restraint system that provides optimum protection. Oftentimes, a conventional child safety seat will meet the safety and positioning needs of a child with special health care needs. Other times, an adaptive or specialized restraint will be necessary.
  • National Dissemination Center for Children with Disabilities
    A central source of information on disabilities in youth, related laws and information.
  • Parlerai
    Parlerai creates a secure network of family, friends and caregivers surrounding a child with special needs using innovative and highly personalized tools to enhance collaboration and provide a safe means of communicating via the Internet.
  • QuickRamps for Kids (United Cerebral Palsy of Metropolitan Detroit)
    This program provides portable wheelchair ramps to families of children with Cerebral Palsy and other paralysis-causing conditions. Click here for application.
  • Selective Mutism Anxiety Research & Treatment Center
    A comprehensive treatment and research center focused exclusively on the anxiety disorder, Selective Mutism in young children and teenagers.
  • Selective Mutism.Org (SMG)
    A resource for SM information, providing a network of families and treating professionals across the world who uniquely understand the struggles of SM.
  • Summer Camp '08 (Family Center on Technology and Disability)
    Patti's Comment: I know nothing about this camp, so this in not an endorsement of any kind. If any of you have had good or bad experiences with this camp or others you would like to post, please feel free to do so. There are valuable resources at the back of the newsletter re: how to choose the best camp for your child.
  • The First Tee
    Provides young people of all backgrounds an opportunity to develop life-enhancing values such as confidence, perseverance and judgment through golf and character education.
  • Variety (The Children's Charity of Greater Philadelphia)
    Variety's goal is to empower its children to live life as a participant, not as a spectator.