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Alzheimers/Dementia « Aging Issues

Alzheimer's Awareness

 

Articles, Publications and Resources
re: Alzheimer's and Dementia

 

ABC News Videos and Resources Related to Alzheimer's and Dementia

  • Alzheimer's Disease and Dementia: Learn More, Get Help  – 11/2/11
    Two news videos regarding life factors linked to the development of Alzheimer's or dementia and what actions may help to reduce your risk factors. The second video explores the relationship between diabetes and dementia.  Other resources from this ABC News website page are linked below:
  • The ABC News OnCall+ Alzheimer's Center
    Alzheimer's Center includes interviews with those touched by Alzheimer's, advice from leading experts and information for patients and caregivers.
  • Alzheimer's Association
    A national nonprofit group that works for Alzheimer's care, support and research.
  • Alzheimer's Disease Education and Referral (ADEAR) Center
    Part of the National Institute on Aging (NIA), the primary federal agency for medical research. In addition to general information about Alzheimer's disease, the site provides lists of treatment centers, medical literature on Alzheimer's and information on clinical trials.
  • Agingcare.com
    An online community that connects people caring for elderly parents to other caregivers, personalized information and local resources. The web site includes a page dedicated to Alzheimer's and dementia, with information on Alzheimer's symptoms, how to handle dementia-fueled outbursts, explaining Alzheimer's to children and more.
  • Family Caregiver Alliance
    A nonprofit organization that offers national, state and local programs in information, education, services, research and advocacy to support and sustain those who care for loved ones with chronic, disabling conditions.
  • National Association of Area Agencies on Aging
    Aggregates information for all 650 AAAs around the country.
  • National Academy of Elder Law Attorneys
    A nonprofit association whose members are attorneys in the private and public sectors, bar organizations, judges, law professors and students, who deal with legal issues affecting the elderly and disabled.
  • National Association of Professional Geriatric Care Managers
    Assists geriatric care managers in becoming guides and advocates for families caring for older relatives.
  • Alzheimer's Disease International
    An umbrella group for Alzheimer's organizations in 71 countries.

Articles  About Alzheimers and Dementia:

  • 10 Mindful Ways to Care for One With Dementia (Huffington Post – 11/15/10)
    Whether a family member or a professional caring for a person with dementia, whether at the beginning, middle or the end of what can be a very long journey, you may appreciate the following dementia care tips.
  • A Parent's Wish
    A touching and poignant slideshow of a parents' wish during their old age. Recommended viewing for children whose parents suffer from old age diseases (Parkinsons, Alzheimers, Dementia, etc.).
  • Alzheimer's: Understand and Control Wandering (Mayo Clinic)
    Alzheimer's causes disorientation, which can lead to wandering. Here's how to curb or prevent wandering, as well as ensure a safe return if your loved one is lost.
  • Alzheimer's Behind the Wheel: A Medical Test to Determine if People with the Disease Should be Driving (Scientific American – 2/9/09)
    Giving Alzheimer's patients a battery of cognitive tests may help predict whether it's safe for them (and us) to get behind the wheel, according to a new study.
  • Antipsychotic Drugs Double Risk Of Death Among Alzheimer's Patients (Science Daily – 1/11/09)
    New research into the effects of antipsychotic drugs commonly prescribed to Alzheimer’s patients concludes that the medication nearly doubles risk of death over three years.
  • Are Memory Loss and Dementia the Same Thing? (Michigan Dementia Coalition)
    This article, other related topics and FAQs.
  • Bearing the Financial Burden of Alzheimer's (9/29/16)
    Caring for a person with Alzheimer's can be costly. There are various options available depending on the person's marital status, age, and net worth. Families should enlist an elder-care lawyer to map out a strategy.
  • Be Proactive: Plan for Long-Term Care (L.A. Watts Times – 8/6/09)
    It’s not a certainty but odds are high that Alzheimer’s disease could affect you or a loved one at some point in the future. And should that happen, a recent study shows that the cost of long-term care associated with that disease could be staggering.
  • Brain Study Indicates Why Some Memories Persist (NPR – 1/29/09)
    A new study appears to explain why people with Alzheimer's disease often remember events from the distant past — but not things that happened recently.
  • Brooke Astor's Lasting Legacy (NY Times – 10/7/09)
    Remember the Astor trial? The ongoing case raised questions about whether noted philanthropist Brooke Astor, diagnosed with Alzheimer’s disease, understood what she was doing when she changed her will in 2004, diverting millions that had long been promised to charities to her son, Anthony Marshall.
  • Dementia Increasing Among the 'Oldest Old' (Caring.com – 7/13/09)
    Scientists tend to think that dementia and Alzheimer's disease taper off in the oldest, but a new study finds that people over 90 have the highest rates.
  • Dementia Patients Don't Forget Feelings (The Peninsula – 3-11-11)
    In all your dealings with elderly relatives with dementia, it is vital to bear in mind that they retain memories of feelings, even though their capacity to retain recent facts is almost nonexistent. Alas, you will probably need to explain this to any “experts” into whose hands they fall.
  • De-Mystifying Behavioral Challenges (The Intentional Caregiver – 11/8/10)
    Accurately and completely describing and defining behavioral problems is the most important step in identifying effective solutions.  Patients are unique and the solutions to their problems are often just as unique. Using a systematic dementia specific approach to evaluating behavioral problems can help caregivers to find multiple solutions to behavioral issues. 
  • Diagnosing Alzheimer's: How Alzheimer's is diagnosed (Mayo Clinic)
    To diagnose Alzheimer's dementia, doctors conduct tests to assess memory impairment and other thinking skills, judge functional abilities, and identify behavior changes. They also perform a series of tests to rule out other possible causes of impairment.
  • Is Laughter Yoga the Best Medicine for Dementia? (AARP – 12/1/10)
    It may help Alzheimer's patients and their caregivers. Do we laugh because we're happy? Or are we happy because we laugh? Every week, yoga instructor Erika Ruiz volunteers at an Easter Seals center in Miami to exercise with 50 people diagnosed with dementia and their caregivers.
    Patti's Comment: Our dear friend, Sandy Mall, is a Certified Laughter Yoga instructor and we do it at the office!
  • Finding Alzheimer's Before a Mind Fails (New York Times – Dec. 26, 2007) An ambitious new scientific effort to find ways to detect Alzheimer’s disease at the earliest possible moment.
  • Guidelines Proposed for Early Detection of Alzheimer's Disease (Lamson & Cutner – 7/26/10)
    For the first time in 25 years experts in Alzheimer’s disease have proposed new guidelines regarding the criteria used for diagnosing the disease. The new guidelines would allow special tests that use brain scans, biomarkers and other new technologies to clinically diagnose the disease even before any symptoms appear. These tests would replace the way Alzheimer’s is currently diagnosed, which is based solely on the detection of symptoms.
  • How People With Dementia Behave When They Get Lost (About.com)
    People with Alzheimer's disease or other forms of dementia, can wander away from their home and the prevalence of such wandering incidents is expected to grow as aging populations increase.
  • Is Dad at the Shelter? (Rick Law's Elder Law Blog)
    Recently I was sitting down with some very good friends when a cell phone rang. A look of worry shot across my friend’s brow as he looked at me and apologized, “I’ve got to take this call… my Dad’s missing! He’s gone wandering…”
  • Keeping Those With Alzheimer's Engaged (New York Times – 3/12/09)
    The Museum of Modern Art has started the MoMA Alzheimer’s Project, an initiative to help other museums and professional caregivers develop their own programs for people living with dementia and Alzheimer’s.
  • May Someone With Dementia Sign a Will? (Elder Law Answers – 7/22/12)Millions of people are affected by dementia, and unfortunately many of them do not have all their estate planning affairs in order before the symptoms start. If you or a loved one has dementia, it may not be too late to sign a will or other documents, but certain criteria must be met to ensure that the signer is mentally competent.  
  • Medicaid's Role for People with Dementia (10/19/15)
    Most people with dementia have Medicare, but due to high out-of-pocket costs and lack of long-term services and supports (LTSS) coverage, low-income people with disabilities resulting from dementia may need Medicaid to fill in the coverage gaps.
  • New Enzyme to Fight Alzheimer’s Disease Identified (Dementia Today – 9/21/12)
    An enzyme that could represent a powerful new tool for combating Alzheimer’s disease has been discovered by researchers at Mayo Clinic in Florida. The enzyme — known as BACE2 — destroys beta-amyloid, a toxic protein fragment that litters the brains of patients who have the disease.
  • Moving Toward a Cure While Addressing Care (Huffington Post – 8/3/12)
    Our nation is on the move: moving toward a cure, while addressing care for families affected by Alzheimer's disease and related dementias. The U.S. Department of Health and Human Services (HHS) in May released the first-ever "National Plan to Address Alzheimer's Disease." This historic report was the product of bipartisan legislation, rare in this Congress, which established an advisory council composed of government and private leaders, and which mandated a national strategy on Alzheimer's disease that would be updated annually.
  • Needs of Alzheimer Population Addressed in Healthcare Reform Legislation (Alzheimer's Assn.)
    While the Association did not endorse any specific healthcare reform legislation, the Association did work to ensure that all bills under consideration contained the strongest provisions possible to address the particular challenges and concerns of the more than 5 million Americans with Alzheimer’s. Several provisions in the final measure would deliver substantial benefits to those with Alzheimer’s and other dementias and to their caregivers.
  • Nutrient Cocktail Helps Improve Brain Function in Those With Early-stage Alzheimer's
    During clinical trials, a three-nutrient cocktail of B vitamins, phosopholipids and antioxidants was found to promote the growth of certain brain synapse connections that typically erode during the early stages of Alzheimer's, according to the MIT report.
  • O'Connor, Gingrich, Satcher Discuss Alzheimer's (NPR – 3/25/09)
    Former Supreme Court Justice Sandra Day O'Connor, former Speaker of the House Newt Gingrich and former Surgeon General David Satcher discuss efforts to combat Alzheimer's disease. They're on a task force studying the disease, which may overwhelm the U.S. health care system as baby boomers age.
  • O'Connor's Husband, Afflicted with Alzheimer's, Has New Love (ABA Journal – Nov. 13, 2007)
    Retired Supreme Court Justice Sandra Day O’Connor visits her husband at a Phoenix Alzheimer’s facility even though he no longer remembers her and has fallen in love with another woman.
  • Practice Guideline for Treatment of Alzheimer's and Other Dementias (APA)
    Developed by psychiatrists who are in active clinical practice.  
  • Preparing Your Home for a Loved One with Alzheimer’s: A Caregiver’s Guide (9/25/16)
    Alzheimer’s disease has unique symptoms and traits, so it’s likely that your home will need some modifications in order to create the best environment for your loved one. This guide will cover all the adjustments you should consider making room by room, with tips on creating both the safest surroundings and the most secure environment.
  • The Benefits of Cooking with Alzheimer’s: A Caregiver’s Guide 
    Comprehensive guide encompassing the cognitive, emotional, and other health-related benefits of cooking for people with Alzheimer’s disease, how to create a safe environment for cooking and baking, ways caregivers can assist to make the activity enjoyable, and addressing eating challenges that may arise among individuals suffering from Alzheimer’s disease.
  • The Changes of Aging (Discover Magazine – 2/12/10)
    If you ask people over 60 what they dread most, dementia is almost always in the top three on their list of health concerns. After all, it is memory that makes us who we are; without it we are forever trapped in the moment, with no window on the past or the future.
  • The Expensive Cost of Caring for Alzheimer's Patients (Newsday – 10/8/09)
    The costs of long-term care for Alzheimer's patients can easily deplete even the deepest bank account. Because the disease lasts so long – anywhere from two to 20 years, depending on the stage at diagnosis – and because the type of care needed often falls beyond the scope of government health care programs, families find themselves scrambling to find the money needed to maintain care for their loved one.
  • The High Price of Caring for a Loved One with Alzheimer's (NPR – 2/29/12)
    Caring for a family member with the personality-draining disease can take a hefty financial and emotional toll. Nearly 15 million people fall into the role of unpaid caregiver for those sick with dementia, according to the Alzheimer's Association. Add it all up, and it comes to about 17 billion hours of unpaid care valued at $202 billion in 2010 alone. 
  • The Man Who Wasn’t There: What Exactly Is Alzheimer’s Disease?
    Author Anil Ananthaswamy explores how different conditions, from Alzheimer’s to out-of-body experiences, affect the concept of the Self.
  • The Nun Study
    Like some 4 million Americans, Sister Ada (not her real name) is suffering from Alzheimer's disease; as the years go by, she'll gradually lose her memory, her personality and finally all cognitive function. Also see more info from the University of Minnesota.
  • Walking May Delay Alzheimer's Decline (McKnight's – 1/3/11)
    A new study finds that walking five miles per week can stall the decline of cognitive function among seniors who are already experiencing mild forms of dementia.  This level of activity can even help ward off symptoms of cognitive decline in otherwise healthy people, according to research presented at the recent annual meeting of Radiological Society of North America.
  • When the Mind Falters, is Sex a Choice? (Washington Post – 9/09)
    Some organic brain changes of old age are characterized by increasingly sexualized behavior. The disability rights community has grappled with issues of consent and intimacy. But issues relating to sex in old age, whether consensual intimacy, or sexual assault, or the nettlesome netherworld in between, receive scant attention.
  • Will Alzheimer's Be Tomorrow's Top Long Term Care Insurance Claim? (Emax Health)
    Every 72 seconds someone in the United States develops Alzheimer's and an estimated 5.1 million Americans suffer from the disease.
  • Zen and the Art of Coping with Alzheimer's (New York Times – April 4, 2008)
    The number of alzheimer's patients is expected to increase dramatically in coming years, straining the health care system.

Publications About Alzheimers and Dementia:

  • Adult Guardianship Jurisdiction (Alzheimer's Assn.)
    Due to the impact of dementia on a person’s ability to make decisions and in the absence of other advanced directives, people with Alzheimer’s disease may need the assistance of a guardian.
  • Alzheimer's, Dementia & Driving (Hartford)
    This is a booklet on Alzheimer's disease and dementia, and how such degenerative diseases affect older person's ability to drive. Also includes a "contract" for the elderly person to complete with his/her family on driving.
  • Alzheimer News 3/24/2009
    Total healthcare costs are more than three times higher for people with Alzheimer’s and other dementias than for other people age 65 and older, according to the Alzheimer’s Association.
  • Medical Treatment of Dementia Patients at the End of Life: Can the Law Accommodate the Personal Identity and Welfare Problems?
    Legal approaches to decision-making in the area of the medical care of incompetent persons are generally based on respect for the patient’s autonomy, or protection of her welfare, or some combination of the two. Advance decision-making and the substituted judgment test are the two examples of autonomy-based legal approaches to incompetent individuals. If the incompetent individual was previously competent, her earlier autonomous decisions regarding medical treatment can be projected into the future once she becomes incompetent.
  • National Plan to Address Alzheimer’s Disease (U.S. Dept. of Health & Human Services)
    On January 4, 2011, President Obama signed into law the National Alzheimer's Project Act (NAPA). This is the first National Plan and is designed to address the major challenges presented by Alzheimer's disease.
  • Rapid Cognitive Improvement in Alzheimer's Disease (Journal of Neuroinflammation – Jan. 9, 2008)
    This report details rapid cognitive improvement, beginning within minutes, using this same anti-TNF treatment modality, in a patient with late-onset Alzheimer's disease.

Resources and Organizations About Alzheimers and Dementia:

  • Assessing Pain in Loved Ones With Dementia (Partners Against Pain)
    Persistent pain is common among older persons, who are more likely to suffer from problems such as arthritis and other chronic conditions. The person with dementia often has trouble communicating his or her feelings or thoughts—and this can mean the inability to tell you if a physical problem, such as pain, exists.
  • Alzheimer's Association
    The leading voluntary health organization in Alzheimer care, support and research.
  • Alzheimer's Caregiver Institute
    You do not have a choice about Alzheimer’s disease but you do have a choice about how you respond to the challenges the disease presents. When it comes to how one can manage quality of life, for both the caregiver and the one afflicted with the disease, there are a lot of choices.
  • Alzheimer Resource Center
    A non profit organization located in Orlando dedicated to providing education and support services for those families (and professionals) who care for people with Alzheimer’s disease and related dementias.
  • Caregiver Guide: Tips for Caregivers of People with Alzheimer's Disease (National Institute on Aging)
    Caring for a person with Alzheimer’s disease at home is a difficult task and can become overwhelming at times.  Here you'll find many helpful articles, booklets and resources.
  • CMS Announces Partnership to Improve Dementia Care in Nursing Homes (CMS.gov – 5/30/12)
    Today, Centers for Medicare & Medicaid Services announced the Partnership to Improve Dementia Care, an initiative to ensure appropriate care and use of antipsychotic medications for nursing home patients.  This partnership – among federal and state partners, nursing homes and other providers, advocacy groups and caregivers – has set a national goal of reducing use of antipsychotic drugs in nursing home residents by 15 percent by the end of 2012.
  • Dementia Care LLC (IATB)
    It is estimated that between 65% and 85% of persons residing in nursing homes and assisted living facilities suffer from some form of dementing illness. In the past, health care professionals,including rehabilitation professionals, have automatically assumed that because there is not cure, there is no treatment.  This is an inaccurate statement.
  • Dementia Today
    Posts scientific news and personal views on Alzheimer’s disease and other dementias.
  • Ethnic Elders Care
    A site designed specifically for people who are or will be caregivers to ethnic elders with Alzheimer's disease and related disorders.
  • Fisher Center for Alzheimer's Research Foundation
    The world's largest research team leading the battle against Alzheimer's.
  • Leeza's Place
    A program of the Leeza Gibbon's Memory Foundation. An intimate and safe setting where caregivers and those diagnosed with any memory disorder can gather to prepare themselves for the challenging journey ahead.
  • MedicAlert + Alzheimer's Association Safe Return (Alz.org)
    A 24-hour nationwide emergency response service for individuals with Alzheimer’s or a related dementia who wander or have a medical emergency. We provide 24-hour, nationwide assistance, no matter when or where the person is reported missing.
  • This Caring Home
    Provides tips and tools to enhance home safety for persons with Alzheimer's and other types of dementia.